A six-year-old girl who was born with her heart outside of her chest has moved thousands of miles from Russia to America in the hope she can have treatment. Virsaviya “Bathsheba” Borun-Goncharova suffers from thoraco-abdominal syndrome or Pantalogy of Cantrell and amazingly she is able to dance and even do the splits despite her condition. More Photos after cut…
According to photos posted online by her mother, her heart can be visibly seen beating with only a thin layer of skin to protect it. The condition which occurs in less than 1 in a million births is so rare her mother Dari Borun has had to move her from Russia to the US in the hope she can have surgery.
Several hospitals around the world are said to have turned Ms Borun’s request to operate on her daughter because of the difficulties and risks of surgery. The pair recently traveled to Boston but the Children’s Hospital could not operate because her aortic blood pressure was too high, she claims. Now the family have moved to Hollywood in the hope that medications can bring her blood pressure down enough to operate.
“I like to draw Jesus, ponies and angels,” said Virsaviya. I don’t go to the school and I don’t go to the ballet but I want to do it at home. My heart is right here. It’s outside of my chest and I really love my mom, she’s always touching my heart because she likes it.”
Virsaviya’s heart, about the size of a fist, has always been outside of her chest since birth. She is expected to require several very complicated operations. The cheerful and talented child who loves dolphins, dogs, horses and Beyonce has had her entire life documented on her mother’s instagram account. It shows hundreds of photos of the child.